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SEND – Participation of Parent Carers in Local Services

SEND - Participation of Parent Carers in local services

Carers Partnership Board

The purpose of the Board is to discuss and address issues of common concern to all Carers in Cornwall. To raise awareness and improve understanding of the vital role Carers undertake in supporting the people they care for and each other. Exchanging ideas, strengthening skills and sharing examples of good practice are essential for the development of good services in Education, Health and Social Care for Carers of children and adults. Members are encouraged to keep up to date with National and local developments and be active in their caring communities.

Current Matters

The Board is currently undergoing a revision in the way it works and new Terms of Reference are being created. A new Carers Strategy for Cornwall is being planned. The Direct Payment system is currently being updated and Adult Day Services are being reviewed ready for recommissioning.

SEND Performance and Engagement Group

Parent Carers Cornwall (PCC) have a seat on this group and there is
representation from Education, Health and Social Care. We meet
monthly and PCC has a designated slot on the agenda to raise concerns
and issues parent/carers have raised with us.

Areas of work currently being raised by PCC are:

The number of young people being on part time timetables or being
excluded from school.
Transition from Children to Adult Services
Support for parent/carers while both waiting for assessments and
following assessments of their child.
We also look at Workstream Plans which cover areas such as:
Special Educational Years Early Years
Preparing for Adulthood
Provision for Communication and Interaction Needs
Where these have been marked as work completed PCC will challenge
if we are not in agreement.


We are currently working with services to produce a new Transition
Looking over the Transport and Cold Weather protocols to feedback to
Working with Education regarding off rolling in schools

Children’s Autism Partnership Group

We chair this working group which brings together those in
leadership roles for Autism in various children’s services within
Cornwall. This was done with the intention to consider what is
offered to children and their families and to ensure collaboration
across services as part of developing a clear approach on managing
the needs of Children and Young People (CYP) with Autism.
It advises and informs commissioners on how families can be
supported through early interventions and consideration is given to
NICE Autism guidance and the National Autism Strategy.
This working group has helped to develop the Autism Strategy for
Cornwall. Another area which the group focused on was to help
develop the Autism Wheel, which can be found on the Cornwall
Care and Support website.

Current Focus of work for 2020
We have met with Cornwall NHS regarding the waiting times for
assessments for families and are currently working with them to
develop a smoother, quicker diagnosis process and the potential for
families to receive support following diagnosis.


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