Life in a neurodiverse family, as with any family, is full of ups and downs – but these ups and downs might be more frequent or more intense when one or more children are neurodivergent. Embrace the chaos, the personalities and the learning and, with a few adjustments in place to keep everyone on track, enjoy the fact that life is never dull!
Watching a film or programme together that includes a neurodiverse family can give perspective, insight and, sometimes, much-needed light relief.
Sibs is a website that offers support, advice and solidarity for siblings of children with disabilities. https://www.sibs.org.uk/about-sibs/
Negotiating family life, particularly with disabilities and neurodivergence in the mix, can be exhausting. It’s vital to make sure you also look after your own mental and physical health – whether this is through leaning on the support of family and friends, finding something you can do regularly away from home and family that recharges your batteries, or even just grabbing half an hour each day, amid the chaos, for yourself.
What Should Parents Know About Raising Neurodivergent Children?
Because neurodivergence is a broad term that refers to a huge range of symptoms, behaviours, strengths, and challenges, there is not one simple set of tips for raising a neurodivergent child.
Many parents of neurodivergent children express frustration or even disappointment that their neurodivergent child does not meet the neurotypical expectations that they had going into parenting. Even if this is not expressed directly to the child, children pick up on their parents’ feelings and might feel unwanted or unloved if the parent has not come to terms with having a neurodivergent child.
In Welcome To Holland, Emily Perl Kingsley describes having a disabled child as planning a trip to Italy and then getting off the plane to find yourself in Holland. She acknowledges the possible stress of being somewhere you did not plan to be, taking a trip that does not fit with your expectations. “But … if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.”
Some parents find this analogy helpful other don’t but if you read it, we hope it will give you something to think about even if it isn’t your experience:
https://www.dsasc.ca/uploads/8/5/3/9/8539131/welcome_to_holland.pdf
My neurodivergent child has turned me into a neurodiverse parent By Jane Kim
Raising a neurodivergent child has made me a more creative, think outside-the-box parent. In some ways, I am a neurodiverse-aware parent. And despite the challenges it brings, it’s changed me for the better.
It’s been more than eight years since I’ve entered the world of neurodiversity and I’m learning and growing alongside my son every day. Here are a few ways in which this whole journey has altered me as a parent and as a human.
5 ways I’ve changed since having a neurodivergent child
I’m less judgmental
If I witness a child behaving out of character with a parent nearby, I rarely think it’s poor parenting. I’ve been there. I remember a birthday party at a trampoline park years ago where the children were all jumping and running with excitement and my son had his face pushed against a mat in the corner which was vibrating intensely from goodness-knows-what. Nothing I did could distract him from that part of the mat for more than a few seconds. A mother that I didn’t know very well came over and struck up a conversation about how she could never remember to bring those socks with the sticky stuff on the soles required for jumping, and that she had several pairs at her house. That simple comment and distraction saved the moment.
It doesn’t take much. Consider who the child may be, things we don’t know about the child and most importantly, the parent’s state of mind. Disapproving looks and snide comments on how to parent won’t help. Offer a smile, a distraction if it feels right and mind your own business!
I see different uses for everyday things
Mini M&M’s aren’t just addictive, but can initially be used as rewards for good behaviour and learning. Headphones aren’t just for listening to music but can be useful to reduce noise when it becomes overwhelming.
Raising a neurodivergent child has taught me that common objects have more than one use or application. It’s made me a more creative thinker overall.
I’m a better communicator
My son has been in speech therapy since he was about 2 years old. Back-and-forth communication was always a challenge, and it’s something he continues to address today. If it’s a topic he’s interested in— the weather, football, certain musicians, etc.—it’s not an issue. But keeping him engaged in less desirable topics is a different ballgame.
Over the years, I’ve learned to keep the conversation going by avoiding yes and no questions, making observations to prompt more conversation and indirectly making requests such as, “Whoa, the TV is loud!,” rather than, “Can you turn that down?” Also, when my son is hellbent on his POV, I often turn to stories. Offering stories that provide a richer perspective and narrative can help.
I’m less attached to a particular outcome, and more invested in the process
Having a neurodivergent child forces me to be more present by addressing current needs and putting processes in place to support those needs. Taking time and deciding on the best process to implement can be difficult work based on research, trial and error and your family’s schedule. If you trust your decision on a particular process, the outcome becomes less important.
I welcome people more readily into my life
I’ve met so many people because my son is neurodivergent. People I likely would never have met such as play therapists, music therapists, speech and physical therapy students, developmental paediatricians and others. Despite how different these people are, there is a common mindset among them, and it’s an easy one to get onboard with: live your best life. These professionals have dedicated their talents and creativity for children to reach their full potential.
There’s nothing more intimate and personal than the relationship you have with your child. Seeing others support, rally, pivot and celebrate milestones with warmth and authenticity have broken down walls I didn’t realize I had. They have shifted my own mindset when it comes to people in general. When I meet someone, I assume positive intent unless proven otherwise.
Becoming a neurodiverse-aware parent didn’t happen overnight. It takes time, hindsight and a tremendous amount of thought—and trial and error. There are amazing days and difficult days. But if there’s one thing that sticks out to me, it’s that the experience of raising a neurodivergent child has fundamentally changed the way I think and act.
Information about financial support
https://www.gov.uk/browse/benefits/families
https://www.gingerbread.org.uk/find-information/parenting-perspectives/parenting-disabled-child/